Notes from Dr. Borkosky

I take one a day for hair growth, and the rest of my hair seems to be coming in so quick and lush!

My skin touching anything for more than 20 min would radiate and be really hot to the touch causing it to become a raging itch. I cry when I talk about how awful my worst months were. RSS or Red Skin Syndrome, also known as Topical Steroid Addiction (TSA) or Topical Steroid Withdrawal (TSW), is a debilitating condition that can arise from the use of topical steroids to treat a skin problem, such as eczema.

I tried anything from castor, avocado, olive, petroleum jelly (the worst), but I think I preferred jojoba in the end. It only has a few ingredients and my hair feels SO clean afterwards. I loved her personality, and she was still funny even in the darkest moments.

I would basically just do a search for whatever “thing” was going to try and see what other ppl’s experiences w it was. For example, “6 months TSW” refers to the time that has passed since ceasing topical steroid treatment. You MUST stay strong.

ITSAN.org. She showed me so much care and support during my entire TSW. I truly believe that we learn and grow the most through suffering.

This reaction can occur after prolonged, inappropriate, and/or frequent use/abuse of moderate- to high-potency topical corticosteroids. In my later months, I used them in public to help protect against germs.

I also just loved that she firmly stood behind the fact that she was NOT going to touch any medication through TSW, not even the immunos. Topical corticosteroid withdrawal refers to a rare adverse reaction relating to the use of a topical steroid after it has been discontinued. Literally only ate veggies, brown rice and chicken for like 7 months. I cried so much, cursed, educated, laughed and everything in between. Spent xmas w my neice and nephew and could actually play w them at month 12. Common Symptoms of Topical Steroid Addiction. Do not be afraid to seek extra help if you’re feeling in the pits or want to give up. I also started recording videos bc I was watching others in TSW who were in similar months as me and seeing how they were doing and always hoped they’d reach a turning point, giving me hope.

Hair would pull right out of my scalp w little to no force. They are SO soft and don’t feel like I’m wearing a bra at all. cjla basics - My friend Rachel told me about this mom brand. Basically every morning I got up, I was covered head to toe in my own filth (skin flakes, ooze, blood) and my skin was SO tight that I had to peel myself out of bed to get into a bath.

I noticed I would flare whether I ate perfect or not. apple cider vinegar - Also added into bath to help with infection but honestly, I think this really dried me out being constantly exposed to it everyday. It's hard to believe that we've been going through TSW with Noelle for 7 whole months now. Or maybe you’re a parent of a child with eczema and you’re looking for answers. She had written everything so specific and every symptom, I had been experiencing in the moment as well. Just do a few sprits onto your skin and let it absorb in.

Even though she was just an hour or so north of me, we didn’t get to see each other until month 8, and we went on a little hike around Baker. magnesium glycinate - I love taking magnesium for bed.

Love this stuff, the only thing I use on my face these days. I basically walked around as a giant greased body.

PTSD is also real. Here’s some 101 on the condition, copy and pasted from ITSAN.

bend soap co’s unscented goat milk soap - I do use soap on my body now bc I feel like my skin feels sticky after a few days from sweat and salt build up. It connected me with others who were dealing w health problems of their own. Shed about a tablespoon of skin a day for months. When you are a little better, celebrate the little victories of simply being able to move about or do simple things like holding a conversation with a friend, or being able to open up your mouth fully to eat! The answer is yes. Trials in life only make us stronger and the resilience you build out of this pain will be worth all the suffering in the end. Not a single medication or synthetic chemical was put into my body to speed up my healing process. Hypersensitivity of the skin to water, movement, moisturizer, fabrics, temperature, etc. Weaning, stepping down or ceasing use can all cause varying degrees of withdrawal symptoms. I clean my face w witch hazel. When I started rapidly shedding after 4 weeks into MW, the dry brush was amazing on helping me clean off flakes every morning and speed up the shedding process.

Amanda Timeoni - When I say the world is small, it really is.

Sometimes I would wrap my arms or legs up after apply zinc or just wear the bandages to avoid my skin rubbing against a rub surface. Even my naturopath came, and I was overwhelmed with the support.

The baths and oils really destroyed me and the routine was so, so exhausting and time consuming.

dry brush - During month 7, I started MW and ceased all exposure to oils, creams and water.

I just wear soft, baggy clothing now while still trying to be ethically conscious of where I’m buying from. My trail angel Shelley actually mailed me so many soaps from this company early in my tsw, but I wasn’t using any soap back then. Amanda and I at Baker on my first hike of 2018!

TSW takes a lot of time and it is excruciating.

I’m used to taking it since it helped me on the pct for my muscles and helps me poop in the morning.

On my one year anniversary, she emailed me the most thoughtful video message I ever received…from someone I have never even met. First and foremost, I wish I would’ve started mw as soon as I could and dealt w the grossness early on. Originally, I wanted to do a month by month post on what happened, but I made this slide slow of my powerpoint slides I showed during my skin talk in January, and it basically shows a quick glimpse of what my skin went through in chronological order over 12 months in just a few minutes. Please do not feel any shame for speaking out and asking. You’re in the right place and I welcome you!!

zinc - Not even sure why I take these, but I take one a day. I know what they were going through.

The internet can bring so much good in these situations. tubigrips - I used these compression bandages to protect my skin as a barrier.

Do it while you can! Camille Mateos - Wow, what can I say about Cam? I take normal dosage now to help w my immune system. It’s extremely hard to seek support from those in real life bc almost no one knows what you’re going through and it’s hard doing this alone. I lived in ugly baggy dresses for most of the year and an XL tank/running shorts I found at cheap places like Old Navy/H&M. Zainab Danjuma - Once again, not in America, but I followed her YouTube videos religiously. For those of you unfamiliar with TSW, it’s the process one goes through in order to break the addiction that their body has developed toward topical... Hello my fellow itchy eczema sufferers!!

Having my skin account was good bc it was a photo diary of what my skin did throughout my worst months.

I used a few different brands like Tom’s, Butte Paste and Stephanie’s but the Amazon one was the cheapest for how big the tub was. It is difficult to give an estimate on how fast one will heal from TSW.

In the beginning, I was using them and tried tying hair ties around my wrists hoping to help keep them on, but I always gave in and took them off. I have not sat in a tub since I started mw, I’m terrified. What Is Steroid Withdrawal?

I promise you that this will only make you a better person. I ended up buying her book on Amazon and reading it made me feel like I was reading my own story. It smells so good. They pretty much market to post partum moms bc their fabric is so soft and stretchy. Document as much as you can in photos.

Is This Really Eczema? Use the tsw fb groups as a resource.

I still use them at month 15 but have weaned off of them for the most part.

But now, I’m able to use it and feel clean and not sting. molly suds - The only laundry detergent I use now. I sat and cried in tears while reflecting what a horrific year it had been, and I couldn’t believe I had made it through a whole year. Topical steroid withdrawal (TSW), also known as red skin syndrome, can occur when a person abruptly stops using topical steroids after years of frequent use. You truly see what matters in life and feel grateful of the little things. rose water - I’ll spray this one my face if it’s feeling dry. I’ve been holding off on this blog for a long time mostly because I’ve been procrastinating and digging up all this old info is a bit traumatic, but I’m finally getting to it now. Some natural shampoos still feel greasy afterwards, but this one does not!

It helped w research and seeing if it helped or not w anyone. It was mostly hard bc I was already self-doubting and to hear others telling you to go back to meds was prob one of the least helpful things to hear as I was trying with all my will power to stay strong. pillow cases - Having extra ones helped to also create a barrier for when I needed to sit somewhere in public. Management of the 6 flare factors: In my previous post, I mentioned 6 factors that can cause a flare: allergens/irritants, lack of rest/sleep, mental and emotional stress, monthly periods, falling ill and alcohol. We bursted into tears and were just so overwhelmed with what we had went through. Cutting it off shorter and shorter was just me wasting extra time trying to hold onto my hair for comfort, but the maintenance was awful and not worth it.

It feels good and my skin does not break.

I want this post to be helpful to those who are looking for info on TSW and suspect they may be going through it themselves.

Also they help if you need to wrap ice packs around your neck or just to soak up any ooze.

A lot of the time it is more of a mental battle than a physical one.

I stopped shopping fast fashion a few years ago now, but I didn’t want to waste money on clothing that was temporary that I needed to get me through. I ate all the chips and vegan desserts I craved and I only saw the ppl I wanted to see. Though almost every night I ripped them off and scratched anyways, they were my safety net.

Immediately, we connected on the same exact symptoms and we started texting each other daily about our ways to cope and new things we were trying. Nerve pain, sometimes described as “sparklers” or “zingers”, Emotional fluctuations, depression, anxiety. Skin flushing bright red, resembling a sunburn, Visible and measurable flaking of skin – appears to be ‘snowing’, Skin cycling between oozing, swelling, burning, and flaking, Red sleeves: (arms/legs become red and inflamed, sparing palms/soles), Thermoregulation altered (feeling too cold or too hot). Topical steroids are prescribed for use on “particular spots” of the skin and are not meant for application to the entire surface of the skin, injection or to be taken by mouth.

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